Thank you to everyone who has told us about their experiences of Long Covid so far.
We have already heard from more than 500 Kent and Medway residents about what it is like to live with Long Covid and which services and support matter most to you. Your views have been used to help shape the Post Covid Assessment Service, which was launched in May 2021.
A report of what people have told us can be found here.
We have established a Long Covid Patient Reference Group made up of patients across Kent and Medway.
The group has been involved in designing services for people with Long Covid. For instance, the group told us there needs to be more ongoing contact for patients as well as an assessment process. As a result we are putting in place ‘case managers’ to support patients in the longer term.
To help make sure that assessment, support and rehabilitation services can now be further improved to meet the needs of people living with Long Covid we want to hear from anyone in Kent and Medway who has had Covid-19 and has experienced symptoms over a longer period of time – particularly for more than three months. We also want to hear from family members and carers of people with Long Covid so we can hear from them about what sort of support they need.
All of your views will help us make sure that local post covid assessment, support and rehabilitation services focus on what matters most to people with Long Covid and their families and carers.
To tell the NHS about your experiences and your views on how to improve services you can:
- Complete a short online survey here. This survey closes on 31 May 2022.
- Telephone the following number – leave a message and we will phone you back and ask you about your views and experiences: 079561 96787
- Send us an email to share your experiences, or if you are interested in joining the patient reference group: firstname.lastname@example.org
Further information about services and support for Long Covid can be found here.
Patients have been involved in co-designing an end-to-end pathway for people with Long Covid. The CCG’s Clinical Cabinet agreed to the new co-designed pathway on 6 January 2022 and specifically thanked the patients who had been involved. See Governing Body papers January 2022, page 111.
In December 2021 Medway Health Scrutiny Committee discussed a report on Long Covid including the involvement of patients. See section 535, page 4.