Long Covid or Post-Covid Syndrome

Most people who catch Covid get better within the first 4 weeks. “Long COVID” is an informal term that is commonly used to describe signs and symptoms that continue or develop after an acute infection of Covid. Depending on how long you have ongoing symptoms for, it can be called one of two things:

  • ongoing symptomatic Covid: this is where your symptoms continue for more than four weeks. 
  • Post-Covid Syndrome: this is where your symptoms continue for longer than 12 weeks and cannot be explained by any other condition.

Symptoms of Long Covid can be many and varied and can change over time. The most commonly reported symptoms include breathlessness, chest tightness or pain, fatigue, headache, chnage of taste and smell, confusion and memory problems; commonly called brain fog.

The length of your recovery from Covid is not necessarily related to the severity of your initial illness or whether you were in hospital. If new or ongoing symptoms do occur and they are causing you concern, you should always seek medical advice and support.

The NHS website Your Covid Recovery is there to help people recover from the effects of Covid-19. It includes information from experts about how to manage the effects of Covid on your body, mind and other conditions. It includes information on returning to work and a helpful section for family, friends and carers of people, who are recovering from Covid. 

The National Institute for Clinical Excellence has issued guidelines in identifying, assessing and managing the long-term effects of COVID-19.

To help make sure that assessment, support and rehabilitation services meet the needs of people living with Long Covid we want to hear from anyone in Kent and Medway who has had Covid-19 and has experienced symptoms over a longer period of time – particularly for more than three months. We also want to hear from family members and carers of people with Long Covid so we can hear what sort of support they need.

All of your views will help us make sure that local post-covid assessment, support and rehabilitation services focus on what matters most to people with Long Covid and their families and carers.

To tell the NHS about your experiences and your views on how to improve services you can:

  • Complete a short online survey here. The survey closes on 31 May 2022. 
  • Telephone the following number – leave a message and we will phone you back and ask you about your views and experiences:  079561 96787
  • Send us an email to share your experiences: kmccg.engage@nhs.net

If you, or someone you care for, has Long Covid, please consider joining our patient reference group to help improve services for people recovering from Covid-19

Kent and Medway Post Covid Assessment Service - sometimes referred to as PCAS - opened on 14 May 2021. Over 2000 people have been referred, assessed, and then referred on for treatment. On average patients are waiting between six to eight weeks for their initial assessment and we work with West Kent Primary Care, who provide the service, to monitor demand and make sure it runs smoothly.

Any patient who is experiencing continuing symptoms after 12 weeks of a Covid infection should contact their GP practice.

Before referring to the Post Covid Assessment Service, a  patient’s  GP may carry out further tests - depending on symptoms - so any alternative diagnosis can be ruled out and also to decide if referral to the Post Covid Assessment Service would be suitable.

Once referred,  the Post Covid Assessment Service will get in touch and an expert team of professionals will assess a person’s condition and provide support in accessing services to help recovery.

Patients are usually assessed within six weeks, unless they chose to delay assessment for personal reasons. 

If you are having difficulty being referred to the Post Covid Assessment Service, please email: westkentprimarycare.postcovidassessmentservicekm@nhs.net

The evidence regarding post-covid syndrome in children and young people is rapidly emerging and specialised diagnostic and assessment clinics have been set up to support children and young people.

Presently the demand for this service for children and young people is smaller than that of the adult population, however children and young people in Kent and Medway can be referred by their GP to  local paediatrics clinic who will onward refer (where necessary) to the Children and Young People Long Covid London Hub.

Support and advice for people with Long Covid

 

People living with Long Covid in Kent and Medway share their experiences of living with Long Covid for two years.

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